Improving Transitions of Care and Long-Term Outcomes for Patients With Spinal Muscular Atrophy (SMA)

Improving Transitions of Care and Long-Term Outcomes for Patients With Spinal Muscular Atrophy (SMA)

Spinal muscular atrophy (SMA), a rare neuromuscular disorder, leads to progressive muscle weakness, atrophy, and paralysis. Due to its rarity, awareness of SMA is low. This is particularly true regarding SMA in adults as until recently, treatment was supportive and most patients did not survive beyond adolescence. Although therapeutic advancements have extended the lifespan of many patients well into adulthood, adolescents and adults with SMA have significant care needs that remain unrecognized and unaddressed. Among the top challenges is the transition from pediatric to adult care services. In this video, hear experts discuss key findings and real-world clinical practice changes stemming from a quality improvement program in SMA designed to bridge gaps in the transitions of care (ToC) process. Expert faculty will present the latest clinical evidence in SMA treatment and management, focusing on the unique needs of adolescents and adults with SMA, and providing insights on coordinating care across specialty teams. Additionally, a downloadable point-of-care PDF tool will be available for quick reference on evidence-based ToC practices and resources.

  • Provider:PRIME Education, Inc. (PRIME®)
  • Activity Link: https://primeinc.org/online/implementation-science-initiative-improve-transitions-care-practices-evidence
  • Start Date: 2024-03-29 05:00:00
  • End Date: 2024-03-29 05:00:00
  • Credit Details: IPCE Credits: 1.0 hours
    AAPA Category 1 Credit™️: 1.0 hours
    AMA PRA Category 1 Credit™️: 1.0 hours
    Nursing: 1.0 hours
    Pharmacy: 1.0 hours
    Social Work: 1.0 hours
  • Commercial Support: Source: Genentech (Any division) - Amount: 124750.0 - Is Kind Support: False
  • Activity Type: Enduring Material
  • CME Finder Type: Online Learning
  • Fee to Participate: No, it's free
  • Measured Outcome: Learner/Team Competence, Learner/Team Performance
  • Provider Ship: Directly Provided
  • Registration: Open to all
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